Table of Contents:
- Additional Sources of Information Regarding Mental Retardation/Developmental Disability
- Parenting Information and Support
- Disability Resource Lists and Directories
- Other National Disability Organizations
- International Disability Organizations
- Assistive Technology, Software and Electronic Information
- Health Promotion and Disability Prevention
- Consulting Disability-Related Sites
- Universities and University Based Programs
- Disability Service Providers
- Federally Funded Projects on Mental Retardation and Related Disability Issues
- Information on Disability Legislation
- Federal Agencies
- Organizational and Grant Resources
- Disability-Related Products & Services
------>>> Do you know of a link that should be listed here? Contact the Arc today and request the site to be added! Contact Jessica Rowe (256) 539-2266 or email at Jessica Rowe.
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Additional Sources of Information Regarding Mental Retardation/Developmental Disability
- Rest Ministries, Inc. - Christian organization for people who live with chronic illness or pain.
- Center for Enriched Living - Provide social and recreational programs for over 400 children, adults and senior citizens with mild to moderate mental retardation.
- Amazing Kids - Children's Institute's goal is to enable children and young adults with special needs to realize their fullest potential.
- Gluten-Free Information - Service to people with Downs Syndrome.
- Florida Developmental Disabilities Council - The FDDC guides development and administration of services for people with developmental disabilities by planning and funding research, innovations, and programs to improve the quality of their lives.
- California Center on Life Planning -The California Center on Life Planning is a California Non-Profit Corporation serving the needs of parents of children with special needs.
- The New York State Rehabilitation Association - A Statewide association of 140 not-for-profit agencies across New York State that provide services for people with disabilities.
- Vocational & Rehabilitation Research Institute
- Toward Independent Living & Learning - TILL
- Ministry Health Care -
- Cotting School, (MA) Day school in Lexington, MA for boys and girls ages 3-22 with physical, learning and communication needs.
- The Accreditation Council - A resource for individuals, families, advocates, provider organizations, professionals and the public sector.
- Mental health Internet Resources - a national directory of resources and professionals in the mental health and disability fields.
- Autism Society of Alabama - Information and political action site for Alabamians concerned about autism.
- Mercaz Harmony website all about special education and inclusion.
- IdeaList - The Contact Center Network, Inc. is a New York based nonprofit organization to help people take action on the issues that concern them.
- National Fragile X Foundation - A comprehensive site, developed by the National Fragile XX Foundation, dedicate to information and resources pertaining to fragile X syndrome.
- World Association of Persons with Disabilities - A website for persons with disabilities on the Internet.
- Rehabilitation Research and Training Center on Aging with Mental Retardation
- The Comprehensive Williams Syndrome Home Page
- Toys for Special Children. Enabling Devices develops and manufactures assistive and adaptive technologies for the physically challenged.
- Cheshire Home Inc., special rehabilitative health care facility for young physically disabled adults located in Florham Park, New Jersey.
- Associates for Human Services, Inc. - A private, not-for-profit, agency in Southeastern Massachusetts, providing services that develop independent living, community integration, freedom of choice and physical and mental well-being for children, adolescents, adults and their families.
- New York State Commission on Quality Care - Serves people with mental disabilities and their families by providing independent oversight of the quality and cost effectiveness of services provided by all mental hygiene programs in New York State.
- Fond du Lac County Department of Social Services (Wisconsin) - Aging and Disability Resource Center.
- Sullivan ARC - Sullivan County, Monticello, New York.
- People Inc. - A private, non-profit agency providing services to individuals with special needs and their families throughout Western New York.
- Carnegie Library of Pittsburgh (Disabilities) - Miscellaneous links and items of interest.
- North Bay Regional Center - NBRC is an agency that provides or funds services for people with developmental special needs in Napa, Solano & Sonoma County, CA.
- Ada Access Network - Helping those with disabilities access the world.
- American Association of People with Disabilities
- Prader-Willi Syndrome Arizona Association
- Central England People First
- Asperger's Syndrome
- CARF
- Calif. Depart. Of Developmental Services
- Council for Exceptional Children
- Down Syn On-Line
- Dyslexia - A site in England for anyone interested in dyslexia
- Employment Support Institute - Helping people make better decisions about employment options and policies.
- Gentle Teaching Web Site
- Growing Up With Down's Syndrome
- Harbor Regional Center
- Hydrocephalus Association Homepage - Web site for Hydrocephalus Association, including Hydrocephalus fact sheet.
- JAN - Job Accommodation Network
- Logan - for families and individuals with disabilities
- National Organization for Rare Disorders - Technical assistance and information dissemination on rare disorders.
- Research & Training Ctr. On Family Support/Children's Mental Health
- Speaking for Ourselves
- Steve's Hydrocephalus Page- Writings and musings on neurology, disability and hydrocephalus from a person living with this condition.
- United Cerebral Palsy of Dallas
- United Cerebral Palsy of New York City
- UPSIDE - An informal society of individuals, parents and friends involved in the world of Down syndrome.
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Parenting Information and Support
- Our-Kids: Devoted to Raising Special Kids with Special Needs - a website devoted to providing support and information for parents and caregivers of children with disabilities.
- The Institute for Community Inclusion - Organization which advocates for the right of all people with disabilities to be full participants in all aspects of their communities.
- Chromosome Deletion Outreach, Inc. - Organization providing information and support to families affected by any type or rare chromosome disorder.
- Renee's Communique's - Information on kids with special needs XXYY or Klinefelter Syndrome.
- Maryland Trust for Retarded Citizens - Parenting information.
- Kennedy Krieger Institute - Dedicated to helping children and adolescents with disorders of the brain achieve their potential and participate as fully as possible in family, school and community life.
- Pennsylvania Federation Council for Exceptional Children
- CTAA - Human services agencies that provide any sort of transpiration
- The Alliance of Genetic Support Groups - A national coalition of consumers, professionals and genetic support groups for concerns on genetic conditions
- The California Center on Life Planning - The mission of the California Center on Life Planning is to assist the average family who has a child, spouse, sibling, or parent with a disability in doing comprehensive life and estate planning using a team approach at the lowest, possible cost.
- PACER Center (Parent Training & Information Center)
- The Special Kids Company
- The Association of Congenital Diaphtagmatic Hernia Research, Advocacy, and Support.
- The Indiana Parent Information Network, Inc.
- 11q Research & Resource Group - Provides support and organizational efforts for parents of all children with 11th chromosome abnormalities.
- Adoption Advocates - Specializing in adoptive family support.
- Clinician's View Home Page
- Down Syndrome Home Page - Home page for the Down syndrome list serve.
- Down Syndrome On The Internet
- National Child Care Information Center - A federally-funded project to complement, enhance and promote child care linkages and to serve as a mechanism for supporting quality, comprehensive services for children and families. NCCIC addresses the child care needs of children with disabilities.
- Special Child Magazine - Special Child is a free online publication for parents and caregivers of children with special needs.
- Basic Educational Materials - Basic Educational Materials, Publishers offers quality educational materials for special needs professionals.
- The Sibling Support Project - An excellent site of sibling support resources, workshops and connections regarding brothers and sisters of people with disabilities, chronic illnesses or mental health concerns.
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Disability Resource Lists and Directories
- Family Village - A Global Community of Disability-Related Resources.
- NYS Developmental Disabilities Planning Council - The NYS Developmental Disabilities Planning Council in partnership with individuals with developmental disabilities, their families and communities, provides leadership by promoting public policies, plans and practices.
- National Professional Resources, Inc. - Offers numerous resources including books, videos, professional newsletters, etc.
- Indiana Civil Rights Commission -
- Indiana Civil Rights Commission Hate Crimes Reporting Network -
- Indiana Commission for Women -
- Independent Living USA
- Camphill Soltane - Residential community for developmentally disabled young adults.
- Like Skills for Vocational Success - A resource of trainers to improve life skills
- disABILITY Resources on the Internet
- Liberty Resources - Consumer driven organization that advocates and promotes independent living.
- Internet Resources for Special Children (IRSC) - Wed site dedicated to communicating information relating to the needs of special children on a global basis.
- Special Ed. Resources on the Internet
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Other National Disability Organizations
- ANCOR (American Network of Community Options and Resources
- National Guardianship Association - Provides educational, training and networking opportunities for guardians and surrogates.
- National Center on Educational Outcomes (NCEO) - Provides national leadership in the identification of outcomes and indicators to monitor education results for all students, including students with disabilities.
- National Association of Protection and Advocacy Systems - An association that which represents federally mandated programs that protect the rights of persons with disabilities.
- National Alliance of the DisAbled, Inc. - An online informational and advocacy organization dedicated to working towards gaining equal rights for the disabled in all areas of life.
- Consortium for Citizens with Disabilities - A coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
- Prader-Willi Syndrome Association (USA) - A national organization for families, professionals and service providers dedicated to improving the lives of people with Prader-Willi syndrome.
- United Cerebral Palsy
- TASH
- The National Down Syndrome Society
- Epilepsy Foundation of America - National organization that works for people affected by seizures through research, education, advocacy and service.
- FRAXA Research Foundation - Home page for a national nonprofit organization that provides a variety of information on fragile X syndrome.
- National Ctr. for Children and Youth with Disabilities
- National Down Syndrome Society - Home page for this national organization on Down syndrome. Includes information on inclusion.
- Self Advocates Becoming Empowered
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International Disability Organizations
- Canadian Abilities Foundation - The Canadian Abilities Foundation's mission is to provide information, inspiration, and opportunity to Canadians with disabilities, their families, friends and the entire spectrum of professionals working in their service.
- cri du chat syndrome
- Special Interest Research Group on Aging and Intellectual Disabilities - An international organization of researchers, providers, administrators, and others who are interested in the aging of people with intellectual disabilities.
- Aladdin Project: Theatre for Human Development with Special Populations - Their goal is to enhance the self-esteem and quality of life of a variety of special populations through creative modalities such as drama, art, music, and dance.
- http://www.shef.ac.uk/~nhcon- Nursing and Health Care Resource - UK
- Ontario Association for Community Living
- How Can I Help? - A booklet for friends and relatives when a family has a child with cerebral palsy. Produced by the Cerebral Palsy Association of Western Australia, Ltd.
- Center for Rehabilitation Engineering Research (Sweden)- Individuals interested in assistive technology for people with developmental disabilities.
- Ontario Prevention Clearinghouse
- National Clearinghouse of Rehabilitation Training Materials
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Assistive Technology, Software and Electronic Information
- KidAccess - Foster the uses of technology to meet the needs of children with cognitive impairments.
- The Research Insitute for Assistive and Training Technology
- information on AT funding and systems change information for consumers of AT, including people with disabilities and their families.
- Boston University's Occupational Therapy Dept. - Information on assistive technology, disability-related links
- Center for Information Technology Accommodation - Includes information on all the state Technology Act Programs.
- EASI: Equal Access to Software and Information - Provides information about providing access for persons with disabilities to computing and information technology resources and assists universities, colleges and others to make information facilities accessible.
- Laureate Learning Systems, Inc.
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Health Promotion and Disability Prevention
- Alliance To End Childhood Lead Poisoning - a national non-profit organization dedicated exclusively to preventing childhood lead poisoning.
- National Center for Lead-Safe Housing - A consumer information web site.
- healthfinder - A gateway consumer health information web site from the United States Government.
- FAS Community Resource Center in Arizona
- California Department of Health Services - Information on lead poisoning prevention.
- World Health Organization's Helmet Initiative
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Consulting Disability-Related Sites
- Wilderness Inquiry's - Wilderness Inquiry creates outdoor adventure for people of all ages and abilities.
- Mastertrack Student Manager - Comprehensive, state-of-the-art software for managing special education programs and services.
- Allen, Shea & Associates - A technical assistance group on community living for people with developmental disabilities. Includes various articles and publications including some excellent information on consumer-owned housing and supported living.
- Habilitation Software, Inc. - is a company in the business of creating and selling software for agencies who serve people with developmental disabilities for 14 years now.
- The Disability Link Barn
- Inclusion Press Home Page - Publishers of books and various other publications on inclusion.
- Personal Touch Health Care Apparel - Provider of adaptive and specialty apparel for people with disabilities.
- Western Disabilities Network
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Universities and University Based Programs
- Virginia Commonwealth University - Rehabilitation Research and Training Center on Workplace Support.
- Blazenet - Blazenet is an information and referral service on recreation, fitness, and sports programs available in Georgia for people with physical disabilities.
- National Clearinghouse - National Clearinghouse of Rehabilitation Training Materials
- The Transition Research Institute at the University of Illinois - Headquarters for the National Transition Alliance for Youth with Disabilities, promotes the inclusion of youth with disabilities in the national school-to-work efforts.
- California Developmental Disabilities Netlink - University affiliated program at the University of California, Los Angeles.
- Mental Health and Developmental Disabilities Center, - University affiliated program at the University of California, Los Angeles.
- The Shriver Center - The Eunice Kennedy Shriver Center for Mental Retardation
- Allison Brown's Research Home Page - Home page for older women with disabilities.
- University of North Carolina at Chapel Hill Learning for Life
- National Home of Your Own Alliance - A Technical Assistance Center at the University of New Hampshire Institute on Disability.
- Project I.N.S.P.I.R.E. -A philosophy in which all individuals can participate in physical activities that enable them to be cognitively, and affectively successful within a community that embraces diversity.
- Center on Education and Work - Located at the University of Wisconsin, Madison, School of Education, the Center on Education and Work provides information on Vocational Education, Tech Prep programs and school to work/transition programs.
- C L A S Culturally & Linguistically Appropriate Services -Early Childhood Research Institute
- The Center on Human Policy - A Syracuse University based policy, research and advocacy organization. Includes information about ordering Human Policy Press publications.
- Civitan International Research Center (Univ. of Alabama at Birmingham)
- The Institute on Community Integration - A University Affiliated Program at the University of Minnesota dedicated to improving community services for people with developmental disabilities and their families.
- Interwork Institute at San Diego State University - The Interwork Institute is comprised of two divisions; the Rehabilitation Continuing Education Efforts and Special Education. All efforts focus on promoting the integration of individuals with disabilities into all aspects of school, work, family and community life.
- Iowa's University Affiliated Program
- National Clearing House of Rehabilitation Materials
- UC Berkeley School Psychology
- University of Arizona - ASU Department of Special Education.
- University of Virginia - Web site for University of Virginia, Curry School of Education, Department of Curriculum, Instruction and Special Education. Once to the Special Education page, take a tour through the "Special Education Office!"
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Disability Service Providers
- Lifeworks, Inc. - Provide residential and employment services to individuals with developmental disabilities in Westwood, MA.
- Crest Network - Crest Network is a network of local non-profit community service providers working with folks who have disabilities in Ohio.
- Inland Regional Center - Services for developmentally disabled individuals and their families in San Bernardino and Riverside Counties.
- Louisiana Lions Camp - The Louisiana Lions Camp is a state project of the Lions Clubs of Louisiana, MD-8
- Residential, educational, therapeutic, and recreational services
- Association for Children with Down Syndrome - ACDS offers educational, therapeutic, behavioral and health-related services to people with Down syndrome and their families.
- Avenues to Independence
- Supported Life Institute - The mission of the Supported Life Institute is to offer educational and training opportunities to assist individuals and organizations in the work of improving the quality of life for people with disabilities.
- Martin Luther Home Society - We provide our Lord's touch of love to people with developmental disabilities and other special needs.
- Camp Optimism Summer Residential Camp for Physically Challenged or Disabled Children.
- Order of Alhambra - A Fraternal Order of Catholic Men Dedicated to assisting persons developmentally disabled by mental retardation.
- St. Francis Camp on the Lake - Camp exclusively open for the developmentally disabled with mental retardation in the summer months.
- Harbor Regional Center - Serving Los Angeles County, California .
- Hattie Larlham Foundation - Service Agency in Ohio serving children and young adults with mental retardation and developmental disabilities.
- Little City
- The Option Institute - Co-founded by Samahria and Barry Neil Kaufman (author of the book SON-RISE), the Option Institute "serves special needs children and their families challenged by autism, Down syndrome, Attention Deficit Disorder and other disabilities" and also has year-round programs for adults.
- Riverbrook Facility
- The Chileda Institute - is a treatment center and care program for children and young adults who exhibit severe mental disabilities.
- Sertoma
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Federally Funded Projects on Mental Retardation and Related Disability Issues
- Partners Resource Network, The PATHProject (PTI of Texas) - PATH is a grant project of Partners Resource Network, Inc., a non-profit agency serving Texas as the statewide Parent Training and Information Center funded by a grant from the U.S. Dept. of Education.
- Rehabilitation; Research Training Center on Aging with Disability
- A. J. Pappanikou Center - Includes information on Connecticut's University Affiliated Program.
- National Early Childhood Technical Assistance System (NEC*TAS) - Web site for federally funded technical support program for early childhood education at the Frank Porter Graham Center at the University of North Carolina
- Rehab. Research Trng. Ctr. on Aging with Mental Retardation
- Rehabilitation Research and Training Center on Neuromuscular Diseases - University of California, Davis
- SEM for people with disabilities - Funded by the national science foundation with focus on science, engineering, math and other sciences for people with disabilities.
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Information on Disability Legislation
- U.S. Dept. of Justice
- Americans with Disabilities Act Document Center - Information on all Titles of the ADA
- Americans with Disabilities Act Information
- Families USA - National nonprofit group which advocates for health and long-term care services.
- LRPnet Online Education Services - Online, fee-based service from LRP Publications providing current information on special education and disability-related products
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Federal Agencies
- PCMR- President's Committee on Mental Retardation
- Environmental Protection Agency - Information on environmental toxins that may cause mental retardation and other health problems
- SSA Home Page - Information and publications on entitlement programs for people with disabilities.
- United States Department of Justice Home Page - ADA information.
- U.S. Department of Education - Information on research in special education.
- U.S. Department of Health and Human Services - Contains links to federal agencies that address families, prevention, etc.
- U.S. Dept. of Housing and Urban Development"
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Organizational and Grant Resources
Disability Related Products & Services
- GoodNites Special Offer - Get A Free Goodnites Absorbent Underpants Sample Kit.
- Special Needs Project - Good Books About Disabilities
- You can also search for books on the these topics at Barnes and Noble
- KidAccess - Foster the uses of technology to meet the needs of children with cognitive impairments.
- RJ Cooper & Associates- Products of Software, Hardware and Assistive Technology services for disabled persons and support persons.
- The Research Institute for Assistive and Training Technology
- Habilitation Software Inc. - serving the DD community for over 14 years with Person-Centered Planning software.
- Biotrast - A contract research organization specializing in biomedical engineering & medicine, computer-based & distance learning.
- Lekoteks - Providing accessible play environments, information, resources to parents and family support. Adapted toys and computer equipment are available for loan.
- Career Planning Specialists Software, Inc. - Designers of OPEN OPTIONS, a computer assisted information base providing vocational information for vocational/career practitioners.
- Gus! Communications Inc.- Develops software products for individuals with speech impairments and maker of the Gus! Multimedia Speech System for Windows.
- HITEC Group, Int'l, Inc. - Specializing in communication AT.
- LAB Resources - Special needs computer software applications.
- Prentke Romich Company- A leading manufacturer of communication
- Wilderness Inquiry's - Wilderness Inquiry creates outdoor adventure for people of all ages and abilities.
- Human Services Research Institute - An organization that focuses on various aspects of people with disabilities including managed care, quality insurance, long-term care, policy and other areas.
- PCI Educational Publishing
- Mastertrack Student Manager - Comprehensive, state-of-the-art software for managing special education programs and services.
- Habilitation Software, Inc. - is a company in the business of creating and selling software for agencies who serve people with developmental disabilities for 14 years now.
- American Airlines - Travel tips for customers with disabilities.
- Different Roads to Learning - Play things for children with disabilities
- The Disability Link Barn
- Law offices of Hamilton D. Moore
- Peinkofer Associates healthcare consultation agency.
- Edmark Publications - A developer and publisher of educational software for children, including children with special learning needs.
- Inclusion Press Home Page - Publishers of books and various other publications on inclusion.
- James Stanfield Publishing Co. - A wide array of education and training materials (videos, curriculum, etc.) for students with developmental disabilities grades K-12 grade.
- Personal Touch Health Care Apparel - Provider of adaptive and specially apparel for people with disabilities.
- Monaco & Associates, Inc. - Disability - related software, videos, etc.
- SAGE Publications - Publishes textbooks and scholarly work related to disability and disability services.
- Learning Services Corporation - Long -Term supported living for persons with acquired brain injury
- Calab Inc. - Calab is committed to provide quality services that enhance independence they serve.